ANZICS Guidelines on Patient and Family Engagement
Hot off the press, the ANZICS Guidelines on Patient and Family Engagement in Critical Care Research and Registries launched at the Noosa CTG conference today. We hope the information presented in these guidelines will help clinicians, researchers, and educators in their approach to patient and family engagement. We thank the many people who contributed to delivering these guidelines for our binational community.
‘To all researchers, I extend this challenge: be as brave and vulnerable in your engagement as those who survive a critical care experience. We entrust you with our stories and our scars. Your task is to meet that courage with humility, curiosity, and commitment. If we do so together, research will not only generate knowledge—it will foster trust, equity, and healing.’ Belinda MacLeod-Smith (ICU caregiver).
ANZICS People With Lived Experience Engagement Pack
The following documents were co-designed with people with lived experience of critical illness. They are used by ANZICS when working with lived experience experts. Other organisations are permitted to use this content to guide the creation of their own documents, but they should clearly adapt the documents to their local context or setting.
1. Welcome letter
2. Position description
3. Engagement contract
4. Confidentiality agreement
5. Remuneration agreement
6. Log of hours
7. Expense claim form
8. Expression of interest form – To be updated