The ANZICS Registry provides audit and benchmarking services for Intensive Care Units across Australia and New Zealand. Data submitted to the Registry is used for the provision of comparative benchmark reports to contributing intensive care units and to local health departments. Reports detail variation in process measures, quality of care indicators and risk-adjusted clinical outcomes.
The ANZICS Registry contains over 3 million episodes of care and is now considered one of the largest datasets of intensive care in the world. Data submitted to the Registry supports research on a broad range of topics. The CORE Management Committee strongly encourages clinicians, academics and researchers to make use of registry data for ongoing intensive care research and quality improvement.
Since the first scientific publication in 2003, the depth and breadth of publications arising from the use of registry data has contributed to improved knowledge of intensive care on a global scale; assisting first and foremost, to improve clinical outcomes and processes of care for critically ill patients and their families.
Please click here for the latest publications using ANZICS Registry data.
ANZICS CORE Data Access and Publication Policy
Requests for Use of ANZICS Registry Data
Requesting data for research and quality improvement projects is encouraged and considered important to further the body of information that will lead to improved patient outcomes.
The ANZICS CORE Data Access and Publication Policy highlights the principles of data handling, sharing, reporting, and privacy of ANZICS Registry data for any purpose. A completed data request form and related documents are required before an information request can be processed. Any work intending to be published or used in presentations need to be submitted to the ANZICS CORE for approval. Requests for information, including reports, analyses and publications produced from data held within the ANZICS Registry must adhere to this policy.
Indigenous Data Sovereignty
ANZICS CORE is committed to respecting the principle of Indigenous Data Sovereignty for the First Nations peoples of Australia and Aotearoa New Zealand.
Indigenous Data Sovereignty refers to the right of Indigenous peoples to govern the collection, ownership, and application of their own data and recognises the unique relationship that Indigenous communities have with their data. It asserts their authority over how that data is collected, used, and shared. This includes information about their cultures, languages, traditional knowledge, and other aspects of their lives.
Indigenous Data Sovereignty is crucial in addressing historical and ongoing issues of data exploitation, misrepresentation, and the marginalisation of Indigenous voices. The framework seeks to empower Indigenous communities in the digital age and promote ethical and respectful practices in data management and research involving Indigenous peoples.
This policy seeks to ensure that the ANZICS Registry operates in a manner that respects and upholds Indigenous Data Sovereignty, fostering trust, equity, and collaboration with Indigenous communities, ensuring concepts of Indigenous Data Sovereignty are embedded in the existing structures of the secondary use of registry data.
Our policy has been endorsed by the Indigenous Data Network, a national network of Aboriginal community-controlled organisations, university research partners, Indigenous businesses and government agencies and departments.
Recommendations for Formatting Tables and Figures
The following recommendations are designed to assist clinicians and researchers to conform to acceptable standards for presenting tables and figures that report data from the ANZICS Adult Patient Database.
Formatting recommendations for tables and figures using ANZICS APD Data
Other Registry Requests
The data dictionaries and online tools for the ANZICS Registry are important resources to help improve and maintain the collection and submission of high quality data. Amendments to definitions, value ranges, diagnosis codes and the addition of new data variables may occur from time to time to align with clinical standards and best practice. Data dictionaries and online tools support the standardisation of data variables, reduce ambiguity and improve understanding. This helps to support the validation, cleaning and auditing of data, as well as improve data integration.
Representatives from the CORE Management Committee and the ANZPIC Registry Clinical Advisory Committee oversee version updates and requests for amendments to the registry datasets, dictionaries and online resource tools, and welcome suggestions for edits or new inclusions from the clinical community.
All requests for change will be reviewed by the appropriate committee representative as soon as possible. Approved changes to the APD and ANZPICR data dictionaries will be held for publication until a new version is due for release which is usually on an annual/bi-annual basis. If time permits, approved changes to the CCR Survey will go live in the next annual survey round. Approved changes to the CHRIS platform can be undertaken promptly if there is a community imperative.
To request a change, please complete and submit the ANZICS CORE Registry Amendment Request Form.